Health tech specialist, Sanius Health, has celebrated Rare Disease Day 2023 and highlighted its commitment to improving the lives of patients living with rare diseases.
Rare Disease Day, which takes place the last day of February each year, is an international awareness-raising campaign for rare diseases. The day seeks to raise awareness of rare diseases, patients’ challenges, and the need for equitable access to diagnosis, treatment, and care. Rare diseases are defined as conditions that affect fewer than 1 in 2,000 people, and there are currently more than 7,000 known rare diseases affecting an estimated 400 million people worldwide. These diseases can be difficult to diagnose and treat due to their rarity and the limited understanding of their underlying causes.
On Rare Disease Day 2023, Sanius Health reaffirmed its dedication to improving patients’ lives with rare diseases, stating: “We recognise the importance of early diagnosis, personalised treatment plans, and access to innovative therapies. By working together with patients, healthcare providers, and the wider community, we can make a difference in the lives of those affected by rare diseases.”
Sanius Health currently supports patients living with sickle cell disease and is rolling out its patient ecosystem to people living with Amyloidosis, Fabry Disease and CML. Its digital health ecosystem enables patients to track their symptoms, monitor their treatment progress, and understand what works and doesn’t for their condition.
Orlando Agrippa, CEO of Sanius Health, added: “Rare Disease Day is an opportunity to raise awareness about the significant impact that rare diseases have on patients and their families. At Sanius Health, we are dedicated to improving the lives of patients with rare diseases by developing innovative, personalised ecosystems to help them manage and understand their condition.”
If you would like Sanius Health to expand into a rare or chronic condition that you think would benefit from the ecosystem, please reach the team here.
In September the innovator launched a UK-wide sickle cell disease awareness campaign, with the campaign’s core message, ‘this is what sickle cell looks like’.
